Oncology patients are forced to face challenging news, medical symptoms, and significant lifestyle changes
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The social impact of a cancer diagnosis is profound. More than half of patients report feeling more isolated after their diagnosis, with those who live alone, people of color, and low-income individuals experiencing the most significant effects. While family ties may grow stronger, friendships and workplace connections often weaken, particularly as patients deal with physical symptoms or fear of imposing on loved ones. Many cancer patients crave a community that understands their journey, with 89% wishing for better education for those in their lives on how to provide support, including knowing what to say, how to listen, and offering practical help.
In my role as an emergency medicine physician, I often encounter cancer patients who share their post-diagnosis experiences. It seems many are battling both the disease and a sense of isolation.
To explore what effective support looks like, I consulted two experts with different perspectives. Dr. Ihuoma Njoku, a psychiatrist and medical director of psychiatric oncology at the Sidney Kimmel Comprehensive Cancer Center in Philadelphia, focuses on the mental health of cancer patients. Jessica Walker, founder and CEO of Five Dot Post, creates cards tailored for those facing serious health challenges like cancer. Their insights offer guidance for those unsure of how to support a loved one with cancer.
The Fear of Saying the Wrong Thing is Universal
In 2017, Walker began designing cards after her husband Tommy was diagnosed with esophageal cancer. The diagnosis was shocking, and she learned a lot about peopleâs reactions. âEveryone seems to struggle with the same thing I did,â she notes, âbeing so afraid to say the wrong thing that they say nothing at all.â
Dr. Ihuoma Njoku
Adaira Landry
Dr. Njoku supports Walkerâs observation, emphasizing that presence often matters more than words. âBeing present, consistent, and honest about your capacity is most helpful,â she says. Engaging in open conversations and asking questions like, âHow can I best support you right now?â is a great way to start. The aim is to convey support without feeling pressured to make everything perfect.
Skip the Toxic Positivity
One common mistake is excessive cheerleading. Phrases like âYouâre a fighterâ and âYouâve got thisâ are frequent, but Walker calls this âtoxic positivity,â which is prevalent among cancer patients.
âPeople donât want constant reminders that theyâre warriors,â she says. âThey want to hear, âThis is difficult and unfair â and Iâm proud of you regardless.ââ Acknowledging the challenges while expressing love and pride is what truly resonates.
Dr. Njoku adds that patients often withdraw not because of those around them, but due to concerns about burdening others with their emotions. âIf you notice someone pulling back, donât back off. Instead, gently acknowledge their struggle and offer your support,â she advises.
Be Specific â Donât Ask âWhat Do You Need?â
Jessica Walker
Corey Rives Visual Art
Asking âWhat do you need?â can be burdensome for patients already making numerous decisions. Walker describes the challenge of making critical medical decisions daily and then managing othersâ offers to help.
âIt becomes another task,â she explains. âItâs more helpful when people say, âIâm bringing dinner at six â do you prefer this or that?'â A specific offer alleviates the patientâs mental load.
Dr. Njoku agrees, suggesting scheduled activities like regular walks with friends to maintain connections, structure, and control. Even small, consistent commitments, such as phone calls or meal drop-offs, are more impactful than occasional grand gestures.
Itâs important to ensure these activities are not surprises and to ask loved ones what they would prefer to do together.
Donât Disappear After Treatment Ends
Support often wanes after remission. However, both patients and caregivers can face emotional turbulence post-treatment.
âThatâs when you start to process emotions suppressed during the fight,â Walker explains. âSupport is crucial even more then.â Five Dot Post provides cards for these moments, reminding people, âYour treatment may be over, but Iâm still here for you.â
Card from Five Dot Post
Five Dot Post
Dr. Njoku highlights that survivorship brings its own challenges, including fear of recurrence and fewer medical appointments. âReadjusting to life can be a significant transition,â she notes. Checking in during this quieter time can be among the most supportive actions you can take.
Thereâs Room for Humor, Too
Walker launched Five Dot Post with young cancer patients in mind, aware that young adults increasingly face cancers like breast and colon cancer. She and Tommy, diagnosed in their twenties, relied on dark humor during a difficult period. While searching for cards, she found mostly somber ones. However, humor resonates across ages and demographics.
Card from Five Dot Post
Corey Rives Visual Art
âA solemn card may seem thoughtful, but it might not be what they need that day,â she says. âSometimes, a reminder that theyâre not alone and a moment of genuine laughter can be more powerful than many well-chosen words.â
The advice from both experts is straightforward: donât let the fear of imperfection prevent you from being there. Be specific in your offers, allow your loved one to express their preferences, acknowledge the difficulties honestly, and continue supporting long after the initial diagnosis. Many cancer survivors continue to battle isolation.

