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American Focus > Blog > Health and Wellness > Advisers ask CDC leader to explain data removals
Health and Wellness

Advisers ask CDC leader to explain data removals

Last updated: February 1, 2025 4:29 pm
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During the Trump administration, the board was disbanded, only to be reinstated under the Biden administration. Now, its members are once again fighting to ensure that critical public health data remains accessible to the American people.

The removal of information related to transgender issues and medicine, as well as other important data sets, has raised concerns among public health experts and advocates. The sudden disappearance of key resources like the Atlas of HIV, Hepatitis, TB, and Social Determinants of Health Data, the Social Vulnerability Index, and the Youth Risk Factor Behavioral Surveillance System has left many researchers scrambling to find alternative sources of information.

The CDC’s advisory board is now demanding answers from Acting Director Susan Monarez about the rationale behind the data removal, the legal authority for such a decision, and the timeline for restoring access to these critical resources. The board members are not mincing words, emphasizing the urgency of the situation and the potential dire consequences if the data is not restored promptly.

In the midst of this turmoil, some government websites have been restored, with a message acknowledging that the changes are in response to President Trump’s executive orders. However, the lack of transparency surrounding these actions has left many in the scientific community feeling unsettled and anxious about the future of public health data accessibility.

As scientists and journalists alike scramble to archive data sets and preserve vital information, the broader implications of this data removal are becoming increasingly clear. Organizations like the Sierra Club have likened the removal of government websites to a modern-day book burning, highlighting the potential harm to American families who rely on this data for their safety and well-being.

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The battle to preserve public health data is far from over, and the CDC’s advisory board is leading the charge to ensure that essential information remains accessible to all. As they await a response from Acting Director Monarez, the board members are united in their commitment to fighting for the transparency and integrity of public health data, no matter the challenges they may face. The Advisory Committee on Immunization Practices (ACIP) has been at the center of controversy in recent years, facing challenges from political interference and changes in leadership. Disbanded by Trump-appointed CDC director Robert Redfield in 2019, the committee was left without a voice in crucial public health decisions. However, under the leadership of President Biden’s CDC director Rochelle Walensky, the ACIP has been reformed and reinstated in 2021.

The members of the advisory board have not been immune to the political pressures surrounding the CDC and the decisions they make. In a bold move, they sent a letter on Saturday, fully aware that it may lead to their dismissal. Dr. Dawes, a member of the committee, acknowledged the risks involved but stated that they were prepared for the consequences.

“We all discussed that,” he said. “We expect to be fired.”

Despite the uncertainty about their future, the advisory board remains committed to their mission of providing expert guidance on immunization practices. With the reinstatement of the ACIP by Director Walensky, there is hope for a renewed focus on science-based decision-making and public health.

It is crucial for the ACIP to have a seat at the table in order to effectively advise on vaccination strategies and recommendations. Their expertise and dedication to the well-being of the public are invaluable assets in the fight against infectious diseases.

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As the ACIP navigates the challenges of political interference and changing leadership, their commitment to evidence-based recommendations remains unwavering. With Director Walensky at the helm, there is renewed hope for a strong and independent advisory committee that can guide the CDC in making informed decisions for the benefit of the public.

The reinstatement of the ACIP marks a positive step forward in ensuring that public health decisions are guided by science and expert consensus. Despite the challenges they may face, the members of the advisory board are determined to fulfill their mission and continue providing valuable guidance on immunization practices.

TAGGED:AdvisersCDCDataExplainLeaderremovals
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